Our Health Data Cooperative is often recognized in the media. Here are summaries of our latest accomplishments.
Healthcare Industry Expert Joins OHDC Advisory Board
Our Health Data Cooperative (OHDC) announced that Josh Rubin, a
renowned learning health system expert, will join its advisory board.
OHDC Chairman Patrick Grant said “the addition of Josh to our
advisory board will clearly strengthen our ability to save lives, reduce
individual health care expenses and cut government spending.”
Joshua C. Rubin, JD, MBA, MPH, MPP serves as Program Officer for
Learning Health System Initiatives at the University of Michigan Medical
School's first-in-the-nation Department of Learning Health Sciences.
Rubin's prior professional experience includes a position as Executive Director
of the Joseph H. Kanter Family Foundation, the only philanthropic foundation
founded by a patient whose overarching mission is to realize the Learning
Health System vision. Previously, Rubin served as a Senior Policy Fellow at
eHealth Initiative and as a Senior Consultant at IBM Global Business Services,
working at the intersection of the health information technology, healthcare
policy, consumer engagement, and public health arenas in both roles.
Rubin has conducted research related to and played instrumental
leadership roles in developing the concepts for and convening
cross-disciplinary meetings that have galvanized multi-stakeholder communities
of interest to advance important collaborative efforts to innovatively address
critical societal challenges at national and global scales -- inside and
outside of healthcare. Examples include: the 2010 International Working
Meeting on Electronic Medical Records and Outcomes Research, the National
eHealth Collaborative (NeHC) Consumer Consortium on eHealth, the 2012 Learning
Health System Summit, and the 2013 National Campus Sexual Assault Summit
convened by Promoting Awareness, Victim Empowerment (PAVE).
Rubin serves as an active founding member of the Interim
Steering Committee of the Learning Health Community, a multi-stakeholder
grassroots movement dedicated to realizing the Learning Health System vision on
a national (and ultimately global) scale. He has presented on the
Learning Health System vision and the need for multi-stakeholder,
trans-disciplinary collaboration to realize it at conferences and meetings
A life member of American MENSA and a graduate of
Georgetown University's College of Arts and Sciences, Rubin holds a Juris
Doctor (JD) law degree from Georgetown University Law Center and is a
member of the Virginia State Bar and the District of Columbia Bar. He also
holds a Master of Business Administration (MBA) and a Master of Public Policy
(MPP) from Georgetown University, and a Master of Public Health (MPH) from
the Johns Hopkins University Bloomberg School of Public Health, all with
About Our Health Data Cooperative
Our Health Data Cooperative (OHDC) is a
new venture developed to help millions of patients better manage the use of
their health data and become part of a larger movement to create
a comprehensive, evidence-based clinical research Learning Health System. Through
an innovative cooperative structure, individuals, not private
companies, own their health information and will directly benefit financially
from the use of their information in research.
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White House Highlights Role of Our Health Data Cooperative in “Data to Knowledge to Action”
New patient owned cooperative announced to help citizens take ownership of their health data
Miami, Fl.- Our Health Data Cooperative (OHDC) responds to the Obama Administration’s call to harness the power of Big Data in Health, to help lower health costs and improve patient care for people in all areas of the country.
OHDC’s project to develop the largest data set of anonymous health records for clinical research in the world was highlighted by the Obama Administration as a high-impact collaboration promoting “Data to Knowledge to Action.” OHDC is working with Touchstone Energy Cooperatives, The School of Information and Library Science at the University of North Carolina at Chapel Hill and the Center for the Advancement of Health Information Technology at RTI International (UNC/RTI). The goal is to include 50 million member patient health records.
OHDC is a new cooperative, owned by the patient, developed to help patients better manage and benefit directly from the use of their health data while providing it anonymously for clinical research uses.
Membership in OHDC is free and open to all United States residents who may sign up at http://www.ourhdc.com.
Health data from patients participating in the cooperative will be collected anonymously using their OHDC Stock Number. All collected data will be aggregated to help health researchers and clinicians; fees paid to OHDC and knowledge gained by subscribing health organizations for access and use of the data will be shared among the patient shareholders.
“Our Health Data Cooperative is built on the premise that Patients should benefit economically from access by third parties to their health information. Ownership by Patients of this Big Data Warehouse will drive quicker dissemination of important treatment information to patients looking for the best healthcare,” said Patrick Grant, Chairman of OHDC.
The School of Information and Library Science at the University of North Carolina at Chapel Hill and the Center for the Advancement of Health Information Technology at RTI are collaborating with ODHC to help build and design the database access as well as the evidence-based educational infrastructure for members that will help them understand the research uses of their data.
ODHC is also collaborating with Touchstone Energy Cooperative to enlist its more than 30 million existing members. Funding of up to $12 Million is being planned to support the effort and enrollment is open to all US residents with a goal to have 10 Million members enrolled in the next twenty-four months.
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Our Health Data Cooperative is a national patient owned cooperative that is committed to lowering the cost of health care for the United States and improving the health care for disparate patient groups by gathering health related data anonymously for each member via their individual cooperative stock number. This allows the data to stay in the patient’s doctor’s office. Individual membership is open to all US residents and there is no out of pocket cost to join. Sign-up is available at http://www.ourhdc.com.
The School of Information and Library Science (SILS) at the University of North Carolina at Chapel Hill is one of the nation's top-ranked schools of library and information studies by U.S. News & World Report. SILS consistently takes a leadership role in today's ever-changing information and library science landscape.
The Center for the Advancement of Health IT (CAHIT) at RTI International uses evidence-based methods to encourage the use of health IT and eHealth in safe, appropriate ways. RTI's multidisciplinary teams of experts provide high-quality and innovative research and development, technical services, and policy analysis to governments and businesses worldwide.
For more information, contact
David Harkleroad, 786-505-2870
Business Plan Competition Offers Cash and Trip to Miami Rewards
Help Change the World!
Miami. Our Health Data Cooperative (OHDC) and the
Kauffman Foundation announce the launch of “Calling 50 Million
Heroes”, a Marketing Plan Competition, to democratize health data
ownership. In this competition, teams will design a method for
building awareness of OHDC among the USA population which is capable
of converting people into members of OHDC, a patient-owned learning
healthcare system. The winning team will receive $1,000 plus a trip
to Miami, Florida to meet with the Board of Directors of Our Health
Data Cooperative in March 2013 to discuss implementation of the plan.
for how to enter the competition are posted at
The competition closes December 2, 2013.
are going to change the world,” said Patrick Grant, OHDC Chairman.
“OHDC is attempting to bring together 50 million patients who agree
to share their data anonymously to provide a better way to provide
health researchers with a better method of collecting valid,
non-biased and non-confounded data. In turn, this will result in
better treatments, lower healthcare costs and reduce nationwide
healthcare expenditures by $hundreds of billions. We estimate that
OHDC will result in better treatments, cut the cost of healthcare in
the US by up to $400 billion annually and help drop the price of
achieving research studies from a per patient cost of around $10,000,
to around $100.”
is a dire need to improve access to patient outcomes so the patient
knows what treatment works best for their disease. OHDC protects the
patients’ rights to that data through a cooperative ownership
model,” said Patrick Grant, OHDC Chairman. “We want to get the
word out now, and that is why we are tapping the best minds in the
country to find effective ways to expand membership.
want this to happen faster
healthcare data is controlled, not by patients, but by thousands of
healthcare systems and healthcare providers. Accessing this data to
answer the question “what treatment works best for my disease?”
is expensive, costing $80 Billion each year. Worse, it results in
conclusions that cannot be replicated 65% of the time according to a
study in Nature. But most tragically, this lack of cooperation
results in 100,000 deaths annually, while adding about $400 billion
annually to the cost of providing healthcare in the US.
the outcome of each treatment for each patient is gathered together
with 50 Million other patients anonymously, health researchers can
analyze this data to find out what works best, safer, quicker and
cheaper. This means you could just "press best treatment for me"
from your smart phone as you sit in your doctor’s office and both
you and your doctor would see the percent of outcomes that had
successes, and their respective risks, for the treatments that your
doctor may be recommending.
Data in Health is an emerging market. Competitors including Private
Search Engine Companies, Social Media Companies, Treatment Companies,
Payers of Insurance, Provider Companies and Vendors are holding their
data so there is no sharing. The identification of any patient across
the various silos of data is difficult to guarantee because there are
rules against a national identification number for assignment to each
patient that is guaranteed to be accurate. The cost of development of
new drugs or solutions to disease are going up and more time and
money only delay patients getting the information they need. The
study currently may have 250 patients being tested and the conclusion
being sold as a solution may not have all the negative effects known
when it is provided to a population of hundreds of millions of
team/person that develops the Marketing Plan which best demonstrates
it has the ability to reach and engage the largest population with
the highest conversion to membership so that a sustainable ongoing
plan can be implemented to help continue the education process among
the population on the value of Our Health Data Cooperative will be
awarded a chance to work on implementation of the plan.
winner of the competition will be objectively determined from the
best plan submitted by December 2, 2013. Upload your solution here: http://ourhdc2013.istart.org/
Touchstone Energy Cooperatives Introduce Our Health Data Cooperative
Finding a health care provider at midnight just
got a bit easier for Touchstone Energy’s Co-op Connections Card Holders with
Our Health Data Cooperative’s LiveCare Clinic™ program, which will provide
24/7 live nurse access for families at an annual enrollment rate of just
$69.95, with an additional small co-pay for needed doctor access any time of
This new program is offered as part of Our Health Data
Cooperative’s services of “Preparing Empowered Patients™”, and Touchstone
Energy’s support of the Our Health Data Cooperative’s efforts to build a
patient-owned health information system that answers, “What treatment works
best for my condition?”
Patient ownership and control of this effort is a key
differentiator of Our Health Data Cooperative and OHDC believes that patient
ownership will be the platform that breaks down the reluctance for sharing,
that currently exists in the private organizations holding silos of health
“We are building a system that helps patients understand their
options when their doctor presents them with a diagnosis and treatment, based
on the analysis of data accumulated from 50 Million other patients. This system
will allow patient and physician access to the probabilities of what may
work (as well as what may not work) from each treatment option,” said Patrick
Grant, Chairman of Our Health Data Cooperative. “With the support
from Touchstone Energy, expanding awareness to their existing 30 Million
members, who already understand the Cooperative principles, will allow us to
more quickly disseminate health information and benefit the individual
Cooperative members economically, who will share in the fees generated by
companies accessing OHDC for research information.”
More information can be found at http://www.ourhdc.org and http://www.connections.coop
Energy Cooperatives is a national
alliance made up of 750 local, consumer-owned electric cooperatives in 46
states. Touchstone Energy co-ops collectively deliver power and energy
solutions to more than 30 million members every day. The Co-op Connections Web
site, Connections.coop, allows consumer-members to obtain details about online,
national and local discounts offered across the country. Use the link below to
find discounts right at home – or anywhere you travel. The list of
participating businesses continues to grow, so check back periodically. Co-op
Connections is just another benefit to being a member of your local electric
Our Health Data Cooperative is a national patient-owned
cooperative. It is committed to lowering the cost of health care for the United
States and improving the health care for disparate patient groups by gathering
health related data anonymously for each member via their individual
cooperative stock number, which allows the data to stay in the patient’s
doctor’s office. Individual membership is open to all US residents and
there is no out of pocket cost to join. Sign-up is available at www.ourhdc.com