Being given at one point only two weeks to live, Mr. Grant is a
survivor of cancer that only 180 people in the US have been diagnosed.
His story is a testament to why the Learning Health System is so
His book, Cristo Jesus Llave, tells of his journey and provides a background of Our Health Data Cooperative's efforts.
His dedication to finding a way for all patients to know the best
treatment for their disease allows the OHDC to provide an open and
transparent modelfor all organizations to join the patient effort .
He has lead several multi million dollar private oganizations during
the past 25 years as well as leading, as President, the foundation that
hosted the 2012 Learning Health System Summit in Washington, DC.
In addition to his foundational leadership in Our Health Data
Cooperative, Mr. Grant is also board member and CEO of CelLynx Group,
Inc and Chairman of Grant Enterprises of America, Inc.
Mr. Grant has an MBA and BS from the University of Illinois.
David Harkleroad - Treasurer / Secretary
Mr. Harkleroad first became exposed to the challenge of researching effective
treatments when his mother was diagnosed with Stage 3 pancreatic cancer.
He and his siblings took to the internet and found a morass of
disconnected and confusing articles, discussion groups and blog
He brings 25+ years of corporate
executive and non-profit experience to
the Board of Directors of Our Health Data Cooperative. He has served as a
board member and treasurer of three non-for-profit organizations. His
executive experience includes positions as Chief Marketing Officer both
for Utopia, Inc., an enterprise data solutions
firm and for Hay Group, a global management consultancy. He also served
as a Global VP at IBM where he focused on strategy and marketing, and as
Chief Operating Officer of The Futures Group, a strategy and insights
has an MBA, with Distinction, from INSEAD and both a BA and BS from the
University of Colorado. David can be found on Twitter as @David Harkleroad.
Board of Advisors
Josh Rubin - Board of Advisors
Joshua C. Rubin, JD, MBA,
MPH, MPP serves as Program Officer for Learning Health System
Initiatives at the University of Michigan Medical School's
first-in-the-nation Department of Learning Health Sciences. Rubin's
prior professional experience includes a position as Executive Director
of the Joseph H. Kanter Family Foundation, the only philanthropic
foundation founded by a patient whose overarching mission is to realize
the Learning Health System vision. Previously, Rubin served as a Senior
Policy Fellow at eHealth Initiative and as a Senior Consultant at IBM
Global Business Services, working at the intersection of the health
information technology, healthcare policy, consumer engagement, and
public health arenas in both roles.
has conducted research related to and played instrumental leadership
roles in developing the concepts for and convening cross-disciplinary
meetings that have galvanized multi-stakeholder communities of interest
to advance important collaborative efforts to innovatively address
critical societal challenges at national and global scales -- inside and
outside of healthcare. Examples include: the 2010 International
Working Meeting on Electronic Medical Records and Outcomes Research, the
National eHealth Collaborative (NeHC) Consumer Consortium on eHealth,
the 2012 Learning Health System Summit, and the 2013 National Campus
Sexual Assault Summit convened by Promoting Awareness, Victim
serves as an active founding member of the Interim Steering Committee
of the Learning Health Community, a multi-stakeholder grassroots
movement dedicated to realizing the Learning Health System vision on a
national (and ultimately global) scale. He has presented on the
Learning Health System vision and the need for multi-stakeholder,
trans-disciplinary collaboration to realize it at conferences and
A life member
of American MENSA and a graduate of Georgetown University's College of
Arts and Sciences, Rubin holds a Juris Doctor (JD) law degree from
Georgetown University Law Center and is a member of the Virginia State
Bar and the District of Columbia Bar. He also holds a Master of Business
Administration (MBA) and a Master of Public Policy (MPP) from
Georgetown University, and a Master of Public Health (MPH) from
the Johns Hopkins University Bloomberg School of Public Health, all with
Regina Holliday - Board of Advisors
Ms Holliday is described by Forbes as
"the Rosa Parks" of the E-Patient movement and is a DC-based patient
rights arts advocate.
Regina is currently at work on a series of paintings depicting the
need for clarity and transparency in medical records. She placed her
first mural in the series in May of 2009.
After the death of her husband, Fred Holliday II, on June 17, 2009,
she began a large mural entitled "73 cents." This piece depicts the
Holliday family's nightmare journey through the medical system during
Fred's cancer care. It can be viewed at 5001 Connecticut Ave.,
Washington DC 20008. The painting became part of the national healthcare
debate and was covered by the BBC, CNN, CBS, AOL, VOA, NPR, The
Washington Post and the BMJ.
Regina Holliday can be found on Twitter as @ReginaHolliday and on Facebook as Regina Holliday, Wash DC.